Allow Me to Introduce Myself…

Hi! My name is RM.

 I am a bright, happy and unique young lady.  Please don’t judge me by my disabilities, but I do have more than a few.  I was born with a rare chromosome abnormality called 4q Deletion Syndrome.  My first couple of years were challenging, and I have overcome A LOT!  There was only a 30 percent chance that I would survive past my second birthday – but I am a fighter!

 I used to need a feeding tube to thrive, but now I am a big girl and I eat all on my own!  I still suffer from “silent reflux” disease (GERD).  I take a daily medication and have yearly endoscopies to monitor this condition.  My heart needed some repairs when I was 4 months old.  The doctor did an amazing job and now I only have a small hole (VSD) that remains, but it doesn’t affect how I can RUN, RUN, RUN!

Sometimes, I don’t like my surroundings.  Certain lights or noises bother me.  I have a hard time paying attention when there are a lot of people and noise around.  I’m really not very good yet at waiting for things or taking turns.

I have speech and language impairments and autism.  Though these are my biggest challenges, my family works very hard to help me learn, communicate, and control my behaviors. 

I use sign language paired with words to help me regulate my speech-flow, articulation, and to remember appropriate sequencing of words.  I may need surgical intervention someday to repair velopharyngeal air escape. 

I like to be around people, but I am not ready to approach other peers yet.  I do like to form warm relationships with adults once I have had some time to get to know them.  I work best in a 1:1 setting that is quiet and distraction-free.  One of my favorite things to do at home is read sight-word flashcards with my Mama.

When I have free time, I like to play with my Disney Cars and my GeoTrax train set.  I love the Muppets, too.  I also have a dollhouse that I enjoy pretend play with, but I sometimes need some direction to do more than just sit the dolls in a chair or line the furniture in rows.

I hope to meet you and show you all of my wonderful gifts.  I have so much to offer, and I always have a smile and a hug to share.  I have a beautiful, fantastic future ahead of me!

 Fondly,

RM

~~~~

**This was a cover letter to the “Binder of RM,” a 3″ binder I plumped full of medical and educational records to present to the Director of the out-of-district autism program we have been fighting for RM to be placed in for more than a year. I am thinking from all I have seen personally throughout the special education process, and what I hear on a CONSTANT basis from other moms of kids living with Autism, no added effort can hurt – and these professionals NEED to KNOW YOUR CHILD!!!**

About Rachel Kenyon

Rachel Kenyon is an Aspie, Advocate and single mom of two beautiful babes - The Boy (11) and RM (8). The Boy is a Legomaniac and RM is a kick-ass diva with Autism and 4q Deletion Syndrome. View all posts by Rachel Kenyon

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